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Mom Faces Backlash For Choosing Residential Care For Her Severely Disabled Son, Is She Wrong?

by Annie Nguyen
April 6, 2026
in Social Issues

A single mother faces an unimaginable decision, should she put her profoundly disabled child in a residential facility for her own sanity and to protect her family?

This mother of two has been struggling for years with her youngest son, who suffers from severe physical and developmental disabilities. She explains the toll this has taken on her family, especially her older son, and how she feels unable to continue providing the 24/7 care her son needs. With no real quality of life for him and her personal well-being and her older son’s mental health at stake, she has decided to send him to a residential care facility.

But the decision isn’t as simple as it seems, many are questioning whether she’s doing the right thing, and she’s facing criticism for her choice.

Want to know what others think? Keep reading to hear more about this tough situation.

A mother is making one of the toughest decisions imaginable, sending her severely disabled child to a care facility

Mom Faces Backlash For Choosing Residential Care For Her Severely Disabled Son, Is She Wrong?
not the actual photo

'I'm putting my extremely profoundly disabled 7 year old into a residential facility so I can forget he exists. I'm not sorry?'

I can't tell anyone this, even my therapist. Lambast me if you wanr and maybe I even deserve it.

I only ask what you would do if you were in my situation. Not what you think "people should" do. What you would REALLY do.

I'm a single mom of 2 boys. 12 and 7. My husband passed away 3 years ago in a work accident.

A very large portion of me believe it was a suicide.

I can't see him EVER making the mistake he made that caused his death,

and he had taken an action just before that which ensured his co-workers weren't in the room.

I fully believe he killed himself because of our younger son and no one will ever change my mind.

We were told when I was pregnant that he would have Downs Syndrome. We could handle that.

Even if it was severe. It turned out he has a chromosome deletion. His disorder is kind of rare so I won't post which specific one

but suffice to say he'll never be anything more than he is now or has ever been. And what he is, is nothing.

He doesn't appear to have any awareness and never has. His eyes are locked in one position, he doesn't respond to noise, touch, or pain.

He is total care. He is capable of nothing. He is tube fed and on oxygen. He is in diapers and will be forever.

He makes no sounds, no attempts to communicate. He never even really cried as a baby.

He has never made an attempt to interact with anyone or his environment.

I'm not upset because I got a special needs/"imperfect" child.

I feel the way I feel because this...... thing..... takes up 200% of my time and does NOTHING. I didn't get an imperfect child. I didn't get a child.

I don't love him. He doesn't have any personality, there is nothing to love. And yet I'm responsible for him.

In addition to his extreme delays he's also medically fragile.

Respiratory crises, fecal impactions (his autonomic nervous system doesn't function properly),

issues with his G tube, infections, pressure sores no matter WHAT we put him on or how we position him.

Our older son has suffered because his non existent brother has colored everything in his life.

He's had medical care get delayed because there's only one of me and hos brother is more critical.

We do have a visiting home nurse but only 20 hrs/week and we aren't eligible for more.

I was starting law school, I gave up my dreams and my plan for my children for this potato.

My older son can't do a lot of things he wants to do because of the youngers need for care and appointments.

The final straw was I heard a sound. I went into Younger Son's room to check, thinking he had forgotten how to breathe again,

and saw Older Son hitting him and screaming "You're why I don't have a mother!

You're why I don't have a father! You're why I can't have friends over! You're why I can't be in sports! I didn't ask for you and I hope you...

Instead of being horrified, I watched. And Younger Son just did. not. react. No signs of pain or fear or upset. No reaction at all.

He breathes but he is not alive. He doesn't know who I am. He doesn't know who Older Son is.

He has no sense of self, life experience, or awareness of his surroundings.

He doesn't need to be in my home. He doesn't know or care where he is. He is genetically my son but he is not family.

My previously abused, brain damaged cat who can't walk straight has more personality and is far more loveable than my "child".

In fact I was looking FORWARD to raising a Downs baby. Even one with severe impairments, for that reason. With disability can come gifts.

This boy is not a gift. He is a genetic mistake I probably should have miscarried and would have definitely terminated if I'd known he would be like this.

And the flip side is, if he HAS awareness..... he's miserable. And there is nothing I can do.

If he has likes and dislikes no one knows what they are. If he is in pain he can't tell anyone.

If he wants anything, he can't communicate. He's had every imaginable therapy, nothing has made a difference.

And so he's leaving our home on the 29th. I feel excited and relieved and then guilty because I know we'll be happier with him gone.

He's already taken my husband and my son's father. He was working so so so much OT to pay for the cucumber's care.

For the experimental therapies insurance wouldn't cover. Because THIS one was going to be the BREAKTHROUGH.

He was tired and defeated and disappointed.

He sought counseling as well but I don't think he could ever say the words "I don't want my son in my home" either.

He's ruined my older son. I was so wrapped up on the younger I never realized how ignored and damaged he was. He lost his father too.

I didn't just lose my husband. HE is my priority now and this malignant lump can be someone else's problem.

At least they'll be paid a wage to care for him. At least they'll get a break from him when they punch out.

I just want to never think of him again and I'm not sorry. And for that, I'm sorry. Thanks for reading.

Edit: Thanks /u/piconeeks, for calling me a liar. Are you a medical doctor?

If your Google Fu was any good you would have stumbled on 3p mosaic deletion-duplication syndrome. That is the disorder my son has.

I've basically identified myself by posting that but hey, it's better than the PMs telling me to k__l myself.

If you look at the features of 3p deletion syndromes they look like Downs.

My insurance didn't cover AFP testing which would have told us it WASN'T Downs and I didn't think we needed it.

I had a regular ultrasound and a 3D. Both Drs were "99% sure it was Downs". This post was absolutely NOT fiction.

Instead the mods and especially /u/piconeeks just "decided" it was.

If anyone would like I'll doxx myself. You can see my ID to verify my name, my marriage license, and my husband's death certificate.

I will then link you to the news article of the "freak industrial accident" that ended his life so you can see it's the same person.

As for not choosing hospice for my son - I can't.

About a year ago I myself was hospitalized with severe depression and C-PTSD (there is proof of that too).

During that time my late husbands mother petitioned to get control as my son's medical proxy and got it.

I'm fighting it but it's a long, complicated process. There are competency hearings. There are statements from doctors and evaluations.

Unless SHE oks hospice, which she refuses, I cannot decide that. I have custody. I cannot ake medical decisions.

She agreed to residential care which I feel is the second best option. So, he's going into residential care.

As for "mistaking" a child choking with hitting, I was downstairs. I couldn't hear what my older son was saying.

I only knew he was speaking. Go punch a blanket or, idk, a person with weak muscle tone.

Then ask said person with weak muscle done to cough. They don't cough normally/forcefully. It's more a "strong puff".

Similar to, again.... idk... a muted punch. When you're used to jumping at every strange sound, it's difficult to discern what's what sometimes.

So, /u/piconeeks..... anything else you'd like to know? Care to admit I just might be telling the truth?

There were identify details I left out but guess y'all need them.

Caring for a child with extreme medical and developmental needs places parents at a much higher risk of lasting stress and burnout compared to caregivers of typically developing children.

Research shows that as disability severity increases, so does the risk of burnout, marked by emotional exhaustion, feeling overwhelmed by caregiving demands, and psychological strain.

In one systematic review, parents of children with physical and intellectual disabilities reported major emotional impact, compromised quality of life, lack of social support, stigma, and relentless caregiving responsibility as dominant themes in their lived experience.

What Caregiver Burnout Looks Like

Medical sources define caregiver burnout as a state of physical, emotional, and mental exhaustion caused by continuous caregiving without adequate support. Symptoms can include fatigue, anxiety, withdrawal from relationships, and neglect of one’s own health, all signs of burnout that can affect health and well‑being.

Other studies specifically linking disability and caregiver burden highlight that parents of children with disabilities experience higher levels of stress-related symptoms than other caregivers, including anxiety or depression due to sustained caregiving responsibilities.

Why the Stress Is So Intense

Long-term caregiving for children with severe disabilities often involves tasks that go far beyond typical parenting, such as managing medical complexities, constant monitoring, and assisting with all daily living needs. These responsibilities can consume nearly all time and energy, leaving little room for rest or personal recovery.

Because the demands don’t diminish over time, caregivers can experience a distinct form of burnout that includes emotional separation, exhaustion, and “contrast with the former parental self”, meaning the identity of the caregiver can feel completely consumed by the caregiving role.

The Emotional Toll Beyond Fatigue

Beyond physical exhaustion, research also points to persistent guilt, feelings of inadequacy, self‑blame, and internalized shame in caregivers who feel they are falling short, even when doing their best. Cultural and social expectations can amplify these feelings, especially when caregivers feel isolated or unsupported.

Placement Decisions Happen in Real Families

Though there is less research specifically on residential placement for medically complex children than on general pediatric care, studies on placement decisions show that parents consider multiple factors, including their own emotional well‑being and the child’s needs, when making such difficult choices.

Take a look at the comments from fellow users:

This group acknowledges the immense difficulty of the situation, validating the decision to place the child in a residential facility, with an emphasis on self-care for the family

funobtainium − Take your other son to Disney or some other vacation for a week on the 30th.

Also, get counseling for him and for you when you get home.

czhunc − I work with profoundly disabled children every day so I probably understand better than most.

Unfortunstly in the vast majority of cases a "miraculous" treatment for brain disease doesn't exist, especially if there was nothing there in the first place.

Most times the best you can hope for is to slow the progression of damage.

I'm sorry for what your family has been through and I wish the best for you.

BarbraRoja − I worked 10 years in a facility for individuals with special needs, some being profound.

All situations are different and I saw with my own eyes families that were simply better because of our facility. No shame for you. None. 0.

This group expresses understanding of the difficult decision, supporting the idea that the child’s current condition may justify end-of-life care, and prioritizing the well-being of the family

deadmunkee − Honestly, I think that may be the best/only choice for you.

While I can't understand exactly what you're going through, I've seen how bad it can be for parents of children with any disorder.

It may sound cruel, but I hope doing this can help the bond between you and your older son.

I hope everything becomes at least slightly better for you.

rainylilac − I work at a state institution. 75 years ago the doctors would have taken the baby at birth

and placed it in a residential hospital and told you to forget about it and move on.

In your case it would have been the right thing to do. Forgive yourself. Refocus on the your son who you can have a future with.

I know that that mentality was wrong for 99% of the babies and children we got in the 1930-1950s but not in this case.

This case is exactly why state institutions need to exist. There has to be a place for people like this.

I'm sorry you have carried this burden so long. You can heal from this. Good luck.

[Reddit User] − I'm sorry for you because you are obviously having a hard time

and emotionally at the end of your rope, which is why you're venting here.

I think you'll get lots of hate for posting this, however, that's the last thing you need. You're being honest. You can't handle this.

Putting the child in a residential facility may be the right thing to do for your family, for him as well as for you and your other son.

You are not harming him. I think you also are still processing your husband's death.

I can't empathize with either situation but it seems like a heavy load.

I don't know what I would do in that situation and no one can judge who hasn't been in your shoes. You're OK, forgive yourself.

WovenWoodGuy − For what it’s worth from a random stranger on the internet, you lasted longer than I would have.

Unfortunately there’s no precedent in this life for the burden you have to carry

but luckily establishments exist specifically so you can be free of that burden.

What your doing might seem wrong to some people, but you’re saving 3 lives by doing it.

Yours, your oldest son, and his unfortunate sibling. It takes a strong person to make a decision like this and you’re going to live with it,

but just keep telling yourself that you could have taken the easy way out and left your eldest with no parents.

At least now you have a chance at life.

Like my grandma used to say, “Whats right for you isn’t always right for everyone. ”

SleepPrincess − Honestly, why are you going to extreme measures to preserve his life?

Without all the machines and artificial interventions, he wouldn't have life. He deserves comfort care and end of life care.

Hes terminally ill. This is unnecessary. Send his soul on to a happier place.

This group focuses on the importance of supporting the older sibling through therapy

lurker_cx − If I was this particular 7 year old, I would probably want to die, and certainly wouldn't care where I was.

Doesn't sound like there is any brain function, or ever was, or ever will be. Doesn't sound like there is a person there at all, or ever will be.

If you apply the golden rule, treat others as you would want to be treated, I would have no problem putting your child in a residential treatment facility.

Take care of yourself and your other child, like you said, it should have been done much sooner

a small family just can't cope with this kind of thing. You are doing the right thing.

Modern medicine can keep someone's heart beating and keep them breathing, but it doesn't mean they are really alive.

Kelly_Flores − This was hard to read but to OP. your 12 year old son was hitting a disabled person and has a lot of internalized hate.

Please please please get him therapy. He might develop problems and if you spoil him after he will think his actions were okay.

And just. Get him therapy ASAP

This group suggests that euthanasia laws could potentially help in these cases, showing a more radical stance on end-of-life decisions

Szos − And this is why a__rtion should always be an option.

Blekerka − I understand you and I completely support you.

This may be harsh, but your story made me wish we had some kind of euthanasia laws set up for situations like these.

Cali4Bear − One of the many reason why I am scared to have kids, I respect your honesty and I hope you have peace of mind.

sassylittlespoon − Oh honey, I'm so sorry. I think you're doing the right thing, and f__k anyone who says otherwise.

I've taken care of lots of patients where there's just nothing there and the drain on the family is incredible. Be kind to yourself.

captainmo017 − “Forgotten how to breathe again” well that’s a horrific sentence. OP, I’m not gonna judge you. U do what u need to do.

What would you do if you were in the mother’s shoes?

This is one of the most heart-wrenching decisions a parent could face, and there’s no clear answer. On one hand, keeping her son in the home could have long-lasting negative effects on both him and his family, but on the other, placing him in a residential facility may bring guilt and judgment from others. The mother made a choice based on her own mental and emotional health, but that doesn’t mean it’s easy to live with.

Should parents always sacrifice their own well-being for the sake of their children, or are there times when stepping back is necessary for everyone’s happiness? What would you do in her situation? Share your thoughts below.

Annie Nguyen

Annie Nguyen

Hi, I'm Annie Nguyen. I'm a freelance writer and editor for Daily Highlight with experience across lifestyle, wellness, and personal growth publications. Living in San Francisco gives me endless inspiration, from cozy coffee shop corners to weekend hikes along the coast. Thanks for reading!

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